PD in LA – for Active Advocates and Curious
Californians
ADVOCACY:
ACTION ALERT
From ParkinsonÕs Action Network -- the federal economic recovery plan includes funding for
the NIH (National Institutes of
Health) for neurological research.
Contact your senators and your member of Congress to urge them to
increase or at least keep this allocation in the stimulus package.
Capital
switchboard: 202-224-2131, www.congress.org
PartkinsonÕs
Action Network: 800-850-4726,
www.parkinsonsaction.org
ADVOCACY: ACTION ALERT
ParkinsonÕs
Action Network coordinates the Bicameral Congressional Caucus on ParkinsonÕs Disease to keep members of Congress
and their staff members up to date on PD issues. With the start of the new Congress, PAN asks that we
encourage all our representatives to join.
In
S. California, these Congress people have not yet joined the PD caucus, so please contact them Capital
switchboard: 202-224-2131, www.congress.org
Senator
Dianne Feinstein, Senator Barbara
Boxer, Elton Gallegly R24, Buck McKeon R22, David Drieier R26, Brad Sherman
D27, Adam Schiff D29, Diane Watson D33, Maxine Waters D35, Laura Richardson
D37, Linda Sanchez D39, Edward Royce R40, Jery Lewis R41, Mary Bono Mack R45,
Dana Rohrabacher D46, Loretta Sanchez D47, John Campbell R48, Darrell Isa R
49, Duncan Hunter R52
PartkinsonÕs
Action Network: 800-850-4726,
www.parkinsonsaction.org
EDUCATION/AWARENESS
ON TELEVISION
Tuesday, February 3, 9pm (or check local
listings) on television
FRONTLINE
on Public Broadcasting System, KCET
(channel 6/28)
ÒMy
Father, My Brother and MeÓ producer Dave Iverson tells of his own and his
familyÕs personal experience. It also gives background on PD, and interviews
with Michael Kinsley and Michael J Fox.
Continuing
onÉ
Wednesday
Feb. 4, 11am ET (8am PT)
Live
Chat with Producer Dave Iverson
Washingtonpost.com
EDUCATION
ON THE WEB
Monday,
February 9
VIRTUAL
RESEARCH ROUNDTABLE
Michael
J Fox Foundation Research Staff on latest PD research
Watch
live or after the fact
Info: www.michaeljfox.org, 1-800-708-7844
ADVOCACY
Sunday,
March 15 – Tuesday, March 17
15TH
ANNUAL RESEARCH & PUBLIC POLICY
FORUM
ParkinsonÕs
Action Network
Trainings
in advocacy and scientific advances; visits with members of Congress
Scholarships
available
LÕEnfant
Plaza Hotel, 480 LÕEnfant Plaza SW, Washington DC
PAN
Forum Registration: 1025 Vermont Ave. NW, .Suite 1120, Wash DC 20005
www.parkinsonsaction.org 800-850-4726
AWARENESS
Sunday,
March 22
TEAM
PARKINSON participation in the Pasadena Marathon
Register: www.pasadenamarathon.org
AND www.team-parkinson.org
CONFERENCE
Saturday,
April 25, 9:30 am – noon
Santa
Barbara ParkinsonÕs Disease Conference
Speakers: Dr. James Sutton, director of Pacific
Neuroscience Medical Group; Camille Torgenson, certified instructor in Òthe Art
of MovingÓ; patient testimonials; panel on caregiving and community resources,
Q & A session
Santa
Barbara Community College, Alice F. Scott
Center
721
Cliff Drive, Santa Barbara
registration:
866-439-2732
AWARENESS
Saturday,
April 25, 2009
15th
Annual ParkinsonÕs UNITY WALK
Day
of Community and Education
Central
Park, New York, NY
Information:
www.unitywalk.org, 866-789-9522
AWARENESS
Sunday,
April 26, 9:00 am
ParkinsonÕs
Beach Brigade Fighting for a Cure
APDA Annual Walk-a-Thon
Santa
Monica
Information: www.parkinsonsbeachbrigade.com
SYMPOSIUM
Saturday,
May 9, 1pm – 4pm (complementary lunch at noon)
PARKINSONÕS
PATHWAYS III
Speakers:
Dr. R. Ziman, Medical Director, CARE, Northridge; David Iverson, producer of
ÒMy Father, My Brother and MeÓ;
discussions of yoga,
laughter, etc.
Educational
Auditorium, Northridge Medical Center
18300
Roscoe Blvd., Northridge
registration
required: Viviane Tondeur,
866-499-2732
AWARENESS
Monday,
Memorial Day, May 25
TEAM
PARKINSON participation in the Los Angeles Marathon
Register:
with the LA Marathon
AND with Team Parkinson, www.team-parkinson.org
SEMINAR
AT SEA
October
18 – October 24, 2009
(reserve by February 20)
Seminar
at Sea
ParkinsonÕs
seminars, workshops, activities,
Dr.
Robert Hutchman, movement disorder specialist; John Argue, author ÒThe Art of
MovingÓ, Susan Kline and Rod Preston
Aboard
Carnival Splendor, out of Long Beach
Ports
of call: Puerto Vallarta,
Mazatlan, Cabo San Lucas
Reservations: Susan Kline, 805-482-2151
INTERNATIONAL
FORUM
September
28 – October 1, 2010
2nd
WORLD PARKINSON CONGRESS
for
people & families living with
PD, researchers and medical professionals
Glasgow,
Scotland
For
further information: www.worldpdcongress.org
This
list is compiled by Mary Yost, diagnosed with PD in 1990 at age 42. She also sends out a free monthly
bulletin called ÒPDLAÓ which includes information on support group meetings. To subscribe or to list events please
contact her at maryyost@earthlink.net,